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March 09, 2009

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sueinithaca

How is your school system for providing services? We had my 4 year old evaluated for sensory stuff (this whole post sounds familiar) and they provide an OT 3x a week and a speech therapist 2x week. It'll probably switch from individual to group therapy next year when she's in kindergarten and actually at the school, but it's a huge financial help. And they have really interesting insight about the cause of some issues - daughter's pupils are always larger-than-normal-compared-to-others - the OT and ST got together and recommended a very thorough vision assessment to see if her pupils are large because of a fear response (caused by sensory issues) or if there is a subtle vision problem that is causing some sensory issues (large pupils = too much light = refusal to make eye contact, leads her to seek extreme input for other senses too, etc). SO to the pediatric eye doctor we go (of course, we can't get in until April). Anyway, cool stuff.

Just don't let the OT use a spinning protocol on a wood floor without putting down a mat first. We have a toboggan shaped cloudy and scratched patch on our living room floor now (and I have to bring it up with the OT today. noticed it as she was walking out the door on Friday) Rats.

hedra

Our floors are already a mess, so that wouldn't be an issue... have I mentioned that our house was a college student rental for 20 years before we took it over? I have no qualms about putting down tape on the floor, them putting stickers on the floor, etc.

Miss M 'graduated' out of OT/PT already at the school system (Easter Seals/0-3) level. Whoever does the program we select may still go through the school... but our early intervention/K-3 (etc) programs in this state also draw in insurance coverage if it is available - so we may end up paying some even if it goes back through that program.

Anyway, yeah, I hear ya. It is weird how the sensory stuff plays out.

Granted, I was Miss M as a child (I used to go through the bandaids at an alarming rate, due to crashing multiple times in the course of the average day). No fear, risk taking... I did eventually learn caution. And then too much caution, and then had to swing back the other direction to get to something like sane.

By the way, I have very large pupils, also. Makes me light sensitive. Doesn't seem to be anxiety-related (because even after my anxiety issues totally resolved, I still had large pupils), but did tend to make me look downward more as a kid in school, because the lights hurt. Possibly set up some of the social challenges, since I 'looked' shy or avoidant, even if it was just eye protecting. None of the kids have large pupils, though, so I don't get to apply that understanding to their cicumstances.

hedra

Update from doc by way of ep, who took her in: Nicely scabbed over, fine, fine, leave it be. (It was leaky this morning, so we did the cross-check with the family doc.)

I'm still periodically putting my hand on my forehead and leaning into it, which for some reason is my gesture for 'I think my brain is going to explode from the adrenaline jolt/trauma/fear-my-child-is-about-to-die'... whee.

Cathy

Dude. One of my big fears is that one of my children will inadvertantly harm a sibling. It's subsided a little since El is no longer a teeny baby. But it's still kind of there. Mostly I don't want them to have to live with it (I think I saw too many movies in a row where this happened).

I'm glad everyone is OK - I continue to be amazed at how many things can be fixed with ice and tylenol.

Mr. B. might should take up crochet or knitting or macrame.

There were no easy answers with that situation - how do you convey the intense necessity to comply with the one as you are sensing that there will be big trouble with the other? This is hard work, this mothering business.

hedra

@Cathy, yeah - and my kids are sufficiently fond of each other that hurting each other is a lot to live with. And that's so far all recoverable stuff. At least I know that there was no underlying ill intent involved.

Mr B needs to take up something, but I'm not sure what he'll go for. Macrame is a good idea... Beading is another.

Hmm, I think we need another 'always' word. Like Stop always means Stop, period. I need one for 'comply'. I usually use Safe, Respectful, or Kind for those, but I missed the point of crisis on that one. Trying to not over-use the key words sometimes backfires.

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